Me pēhea te whakamahere i tō atawhai me te maimoatanga o te hunga mate ki te whai koe i te cystic fibrosis
Ki te whai koe i te cystic fibrosis (CF) me te titiro ki te hapu, he mea nui kia mohio kei te noho nga wahine e noho ana ki te CF e whai tamariki ana me te whakaora tamariki. Hei whakapai ake i to waahi o te whai oranga hauora, he mea nui ki te whakamahere i to hapū me te mahi tahi me to taakuta hei aroturuki ia koe me te hauora o tou pute i te ara.
I mua i to koe hapu , me whai koe i te mana kai pai, kia tau ki te taimaha o te taumaha, me te neke atu i te 40% o te taumaha. I mua i to hapu, me whakamatau to hoa ki te whakamatautau ira ki te whakatau mehemea kei te kawe ia i te ira mo te cystic fibrosis . Mena kei te kawe to hoa i te ira, he 50 ōrau te whai wāhitanga o te tamaiti me te cystic fibrosis. Mena kaore to hoa i te kawe i te ira, kaore to tamaiti i te ahua.
Hei whakarite i to maakutanga he maeneene me te kore raruraru ka taea, ka whakaatu nga taote ki te mahi i enei e whai ake nei:
1. Te Whakaritea i te Tika Kai
Ko te tipu o te tinana e hiahia ana kia piki ake i te wa e hapu ana. Hei whakatutuki i enei tono, ka hiahia pea koe ki te tango i nga taputapu, pērā i te tipu kai, hei whakarite kia whiwhi te tinana i nga kaarata e hiahiatia ana. Mena kaore e taea e koe te kai kai pai ka hiahia koe ki nga kai me nga whakaeke, me haere koe ki te hōhipera ki te tiki kai kai pai, e kiia ana ko te katoa o te kai hauora (TPN), na te roanga roa e mohiotia ana he raina pokapū.
2. Whawhaihia te mate pukupuku
Ko nga mate pukupuku e tika ana kia tukinotia ki nga antibiotiques i te wa ka puta te tohu tuatahi. Kaore e taea e te mate te pakaru i te ringa ki te whai koe i te CF me te whakaiti i te nui o te hauora e tukuna ki to tinana. Ko te koiora iti ehara i te mea he raruraru mo koe, ka pangia ano e koe to tamaiti i te mea kei te whakaaro ia ki a koe ki te whakatutuki i nga matea o te hauora.
3. Te haere tonu ki te Whakanoho Whakanohoora (CPT)
Ko te tikanga o te materotorotohi he mea nui o to maimoatanga o ia ra, me te mahi mehemea ka hapu koe. Ina mahi tika, kaore e kino ki to potae.
4. Tonu o Toi Torotoi CF
Ko te nuinga o nga rongoā o te CF me te hainatanga kei te haumaru ki te tango i te wa e hapu ana. Matapakitia nga rongoä ka taea e koe ki te taha o to taakuta CF me te tumuaki. Ma te arotake i to raupapa rongoā me to roopu hauora, ka taea e to taakuta te whakatau mehemea ka hiahiatia etahi whakarereketanga.
5. Me whakarite mo te Whakauru Hospital
Ka hiahia koe ki te noho ki te hōhipera mo tetahi wa i to wa hapu mo te maimoatanga me te tirotiro. Ko tenei pea ka tupu i roto i nga marama e toru kua pa mai o to hapu mehemea ka hiahiatia e koe to tinana.
6. Whakaotihia E hiahia ana koe ki te panui
Mena ka hiahia koe ki te whāngai i te tamaiti me te miraka kei te nui o te pauna me te konutai, ka taea e koe. Mena ka whiriwhiri koe ki te whāngai, ka hiahia koe ki te whakatau ki to kai kai kaiora ki te whakawhanake i tetahi mahere e whakarato ana i etahi kaarai atu mo koe me to potae.
7. Mahere mo te Future
Ahakoa te haere ki te maimoatanga, ka taea e te cystic fibrosis te whakaiti i to ora. Ko te roa o te ora mo nga tangata whai CF ki te United States e 40 tau te roa.
He mea ahuareka ki te whakaaro mo te kaha o te kore e taea te whakatipu i to tamaiti ki te pakeke, engari he mea e taea ana e koe te whakaaro. Me matapakihia e koe tenei waahanga me to hoa ka timata ki te whakarite mahere mo te tiaki a to tamaiti i te wa e taea ai.
I tua atu i te whakamahi i nga rongoā me nga maimoatanga hei whakahaere i to mate, ka taea hoki e koe te whakaaro ki te whakatipu i te kiri. Kaore nga tangata katoa me CF e tohu mo te whakawhitinga, engari ko te hunga e mahi ana ka kaha ki te whakaroa i to ratau oranga. He kino te tipu o te poaka, engari ka taea e koe te whai waahi ki te whakapai ake i to hauora me te whakawhānui i to ora. I tenei wa, kua neke atu i te 1600 nga mate o te CF i te whakawhitinga o te huhu.
Kua tae atu ki te 150 ki te 200 nga tangata ki te cystic fibrosis kua nekehia mai i roto i te tauera mai i te tau 2007. Ko te nuinga o te hunga e noho ana i te tau kotahi i muri mai, me te hawhe o ratou e rima tau i muri i te whakawhitinga.
Rauemi
- Calderwood, C. me Nelson-Piercy, C. "Asthma me Cystic Fibrosis i roto i te Mahungatanga". Women Medicine Health. 2005. 2: 29-32
- Ko Keng EY, Goss CH, McKone, EF, Galic V., Debley CK, Tonelli, MR me Aitken ML "Nga Hua Whakanoho i nga Whakarite Whakanoho i Nga Whakanuia Fetal In CF Women." 2006 Journal of Cystic Fibrosis 5:85 - 91.
- Kaupapa Fibrosis Cystic. Mō te Fibrosis Cystic. 2016.